TITLE 42 - US CODE - SUBCHAPTER IV - RESEARCH RELATING TO SERVICES FOR INDIVIDUALS WITH ALZHEIMERS DISEASE AND RELATED DEMENTIAS AND THEIR FAMILIES

Part 1 - Responsibilities of National Institute of Mental Health

42 USC 11251 - Research program and plan

(a) Grants for research 
The Director of the National Institute of Mental Health shall conduct, or make grants for the conduct of, research relevant to appropriate services and specialized care for individuals with Alzheimers disease and related dementias and their families.
(b) Preparation of plan; contents; revision 
The Director of the National Institute of Mental Health shall
(1) ensure that the research conducted under subsection (a) of this section includes research concerning
(A) mental health services and treatment modalities relevant to the mental, behavioral, and psychological problems associated with Alzheimers disease and related dementias;
(B) the most effective methods for providing comprehensive multidimensional assessments to obtain information about the current functioning of, and needs for the care of, individuals with Alzheimers disease and related dementias;
(C) the optimal range, types, and cost-effectiveness of services and specialized care for individuals with Alzheimers disease and related dementias and for their families, in community and residential settings (including home care, day care, and respite care), and in institutional settings, particularly with respect to
(i) the design of the services and care;
(ii) appropriate staffing for the provision of the services and care;
(iii) the timing of the services and care during the progression of the disease or dementias; and
(iv) the appropriate mix and coordination of the services and specialized care;
(D) the efficacy of various special care units in the United States for individuals with Alzheimers disease, including an assessment of the costs incurred in operating such units, the evaluation of best practices for the development of appropriate standards to be used by such units, and the measurement of patient outcomes in such units;
(E) methods to combine formal support services provided by health care professionals for individuals with Alzheimers disease and related dementias with informal support services provided for such individuals by their families, friends, and neighbors, including services such as day care services, respite care services, home care services, nursing home services, and other residential services and care, and an evaluation of the services actually used for such individuals and the sources of payment for such services;
(F) methods to sustain family members who provide care for individuals with Alzheimers disease and related dementias through interventions to reduce psychological and social problems and physical problems induced by stress; and
(G) improved methods to deliver services for individuals with Alzheimers disease and related dementias and their families, including services such as outreach services, comprehensive assessment and care management services, outpatient treatment services, home care services, respite care services, adult day care services, partial hospitalization services, nursing home services, and other residential services and care; and
(2) ensure that the research is coordinated with, and uses, to the maximum extent feasible, resources of, other Federal programs relating to Alzheimers disease and dementia, including centers supported under section 285e–2 of this title, centers supported by the National Institute of Mental Health on the psychopathology of the elderly, relevant activities of the Administration on Aging, other programs and centers involved in research on Alzheimers disease and related dementias supported by the Department, and other programs relating to Alzheimers disease and related dementias which are planned or conducted by Federal agencies other than the Department, State or local agencies, community organizations, or private foundations.

42 USC 11252 - Dissemination

The Director of the National Institute of Mental Health shall disseminate the results of research conducted under this part to appropriate professional entities and to the public.

42 USC 11253 - Authorization of appropriations

There are authorized to be appropriated to carry out this part such sums as may be necessary for each of the fiscal years 1992 through 1996.

Part 2 - Responsibilities of Agency for Healthcare Research and Quality

42 USC 11261 - Research program

(a) Grants for research 
The Director of the Agency for Healthcare Research and Quality shall conduct, or make grants for the conduct of, research relevant to appropriate services for individuals with Alzheimers disease and related dementias and for their families.
(b) Research subjects 
The Director of the Agency for Healthcare Research and Quality shall ensure that research conducted under subsection (a) of this section shall include research
(1) concerning improving the organization, delivery, and financing of services for individuals with Alzheimers disease and related dementias and for their families, including research on
(A) the design, staffing, and operation of special care units for the individuals in institutional settings, as well as individuals in institutional settings,[1] as well as individuals in home care, day care, and respite care; and
(B) the exploration and enhancement of services such as home care, day care, and respite care, that provide alternatives to institutional care;
(2) concerning the costs incurred by individuals with Alzheimers disease and related dementias and by their families in obtaining services, particularly services that are essential to the individuals and that are not generally required by other patients under long-term care programs;
(3) concerning the costs, cost-effectiveness, and effectiveness of various interventions to provide services for individuals with Alzheimers disease and related dementias and for their families;
(4) conducted in consultation with the Director of the National Institute on Aging and the Commissioner of the Administration on Aging, concerning the role of physicians in caring for persons with Alzheimers disease and related dementias and for their families, including the role of a physician in connecting such persons with appropriate health care and supportive services, including those supported through State and area agencies on aging designated under section 3025 (a)(1) and (2)(A) of this title; and
(5) conducted in consultation with the Director of the National Institute on Aging and the Commissioner of the Administration on Aging, concerning legal and ethical issues, including issues associated with special care units, facing individuals with Alzheimers disease and related dementias and facing their families.
[1] So in original. The words “as well as individuals in institutional settings,” probably should not appear.

42 USC 11262 - Dissemination

The Director of the National Center for Health Services Research and Health Care Technology Assessment shall disseminate the results of research conducted under this part to appropriate professional entities and to the public.

42 USC 11263 - Authorization of appropriations

There are authorized to be appropriated to carry out this part such sums as may be necessary for each of the fiscal years 1992 through 1996.

Part 3 - Responsibilities of the Centers for Medicare & Medicaid Services

42 USC 11271 - Research program and plan

(a) Grants for research 
The Administrator of the Centers for Medicare & Medicaid Services shall conduct, or make grants for the conduct of, research relevant to appropriate services for individuals with Alzheimers disease and related dementias and their families.
(b) Preparation of plan; contents; revision 

(1) Within 6 months after November 14, 1986, the Administrator of the Centers for Medicare & Medicaid Services shall prepare and transmit to the Chairman of the Council a plan for research to be conducted under (a)[1] of this section. The plan shall
(A) provide for a determination of the types of services required by individuals with Alzheimers disease and related dementias and their families to allow such individuals to remain living at home or in a community-based setting;
(B) provide for a determination of the costs of providing needed services to individuals with Alzheimers disease and related dementias and their families, including the expenditures for institutional, home, and community-based services and the source of payment for such expenditures;
(C) provide for an assessment of the adequacy of benefits provided through the Medicare and Medicaid programs and through private health insurance for needed services for individuals with Alzheimers disease and related dementias and their families; and
(D) provide for a determination of the costs to the Medicare and Medicaid programs and to private health insurers (if available) of providing covered benefits to individuals with Alzheimers disease and related dementias and their families.
(2) Within one year after transmitting the plan required under paragraph (1), and annually thereafter, the Administrator of the Centers for Medicare & Medicaid Services shall prepare and transmit to the Chairman of the Council such revisions of such plan as the Administrator considers appropriate.
(c) Consultation for preparation and revision of plan 
In preparing and revising the plan required by subsection (b) of this section, the Administrator of the Centers for Medicare & Medicaid Services shall consult with the Chairman of the Council and the heads of agencies within the Department.
[1] So in original. Probably should be preceded by “subsection”.

42 USC 11272 - Dissemination

The Administrator of the Centers for Medicare & Medicaid Services shall disseminate the results of research conducted under this part to appropriate professional entities and to the public.

42 USC 11273 - Authorization of appropriations

To carry out this part, there are authorized to be appropriated $2,000,000 for each of fiscal years 1988 through 1991.

11281, 11282. Transferred

Section 11281, Pub. L. 99–660, title IX, § 951, Nov. 14, 1986, 100 Stat. 3813, which provided for establishment of Clearinghouse on Alzheimers Disease, was renumbered section 445E of the Public Health Service Act by Pub. L. 100–607, title I, § 142(a), Nov. 4, 1988, 102 Stat. 3057, and is classified to section 285e–7 of this title. Section 11282, Pub. L. 99–660, title IX, § 952, Nov. 14, 1986, 100 Stat. 3813, which provided for dissemination project to be conducted by national organization representing individuals with Alzheimers disease and related dementias, was renumbered section 445F of the Public Health Service Act by Pub. L. 100–607, title I, § 142(a), Nov. 4, 1988, 102 Stat. 3057, and is classified to section 285e–8 of this title.

42 USC 11283 - Repealed. Pub. L. 100607, title I, 142(c)(1)(A), Nov. 4, 1988, 102 Stat. 3057

Section, Pub. L. 99–660, title IX, § 953, Nov. 14, 1986, 100 Stat. 3814, authorized appropriations for fiscal years 1988 through 1991 to carry out program of dissemination of information on Alzheimers disease.

42 USC 11231 - Transferred

Section, Pub. L. 99–660, title IX, § 931, Nov. 14, 1986, 100 Stat. 3807, which provided for awards for biomedical research on Alzheimers disease and related dementias, was redesignated section 445B of the Public Health Service Act by Pub. L. 100–607, title I, § 142(a), Nov. 4, 1988, 102 Stat. 3057, and is classified to section 285e–4 of this title.

42 USC 11232 - Repealed. Pub. L. 100607, title I, 142(c)(1)(A), Nov. 4, 1988, 102 Stat. 3057

Section, Pub. L. 99–660, title IX, § 932, Nov. 14, 1986, 100 Stat. 3808, authorized appropriations for fiscal years 1988 through 1991 to carry out program of awards for research on Alzheimers disease and related dementias.

11241, 11242. Transferred

Section 11241, Pub. L. 99–660, title IX, § 941, Nov. 14, 1986, 100 Stat. 3808, which provided for Director of National Institute on Aging to conduct, or make grants for conduct of, research on services for individuals with Alzheimers disease and related dementias and their families, was redesignated section 445C of the Public Health Service Act by Pub. L. 100–607, title I, § 142(a), Nov. 4, 1988, 102 Stat. 3057, and is classified to section 285e–5 of this title. Section 11242, Pub. L. 99–660, title IX, § 942, Nov. 14, 1986, 100 Stat. 3809, which provided for Director to disseminate results of such research to professional entities and the public, was redesignated section 445D of the Public Health Service Act by Pub. L. 100–607, title I, § 142(a), Nov. 4, 1988, 102 Stat. 3057, and is classified to section 285e–6 of this title.

42 USC 11243 - Repealed. Pub. L. 100607, title I, 142(c)(2)(A), Nov. 4, 1988, 102 Stat. 3057

Section, Pub. L. 99–660, title IX, § 943, Nov. 14, 1986, 100 Stat. 3809, authorized appropriations for fiscal years 1988 through 1991 to carry out programs of National Institute on Aging in research on services for individuals with Alzheimers disease and related dementias and their families.